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Congenital, or infantile, fibrosarcoma tends to form in the connective tissue at the ends of arm and leg bones, but it can also form in the bones themselves. It is the most common soft tissue sarcoma in babies and usually is seen at birth or shortly after, although ultrasound may detect the tumor before birth.
The cause of infantile fibrosarcoma isn’t known, but cells typically have a genetic variation. Infantile fibrosarcoma is not a benign tumor, and it can be large and fast-growing. Fortunately, it rarely spreads, or metastasizes, to other parts of the body.
Infantile fibrosarcoma has an excellent cure rate, with 80% to 100% of patients surviving more than five years. Fibrosarcomas in older children and adults are highly malignant and require more aggressive treatment.
Fibrosarcoma has the best chance of being cured when it’s treated by pediatric cancer specialists. Young adults may benefit from treatment at a children’s hospital instead of an adult-service hospital because of the care team’s expertise specifically in childhood diseases.
A coordinated treatment approach among specialist physicians is an important factor in early detection and therapy.
The board-certified and fellowship-trained oncologists at Norton Children’s Cancer Institute, affiliated with the UofL School of Medicine, come together at regular conferences to share viewpoints from various perspectives that help determine the best course of treatment. It’s like getting second, third and fourth opinions all at once.
Our physicians actively conduct clinical trials and publish their discoveries about new ways to identify and treat sarcomas and other pediatric cancers.
By staying at the forefront of research, our physicians are experienced with newly approved therapies and can provide access to trials of experimental treatments.
MRI or a similar imaging scan is the first step in diagnosing infantile fibrosarcoma after a physical exam suggests its presence. If the scan suggests the child has a soft tissue malignancy, a biopsy will be performed. In this procedure, a small sample of the tumor is removed by a needle, however surgery may be required to retrieve a larger sample. The biopsied tissue is then examined by a pathologist to determine a diagnosis.
The main treatment for infantile fibrosarcoma is surgical removal of the tumor and, in some cases, removal of healthy surrounding tissue to reduce the risk of recurrence. Radiation therapy typically is used after removal of larger tumors to further reduce the risk of recurrence. Chemotherapy typically is not used unless the patient has advanced fibrosarcoma.
El programa de atención oncológica del Norton Children’s Hospital es uno de los programas de oncología más antiguos de EE. UU. con acreditación constante del Comité del Cáncer del Colegio Americano de Cirujanos. Con el respaldo de casi 60 años de experiencia en pediatría, contamos con un equipo de atención oncológica con experiencia compuesto por más de 200 especialistas líderes en cáncer, que incluye oncólogos, cirujanos, enfermeros, trabajadores sociales, capellanes, conductistas, terapeutas y farmacéuticos. Este equipo multidisciplinario capacitado se concentra por completo en las necesidades de su hijo y su familia.
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